6 things every family should have in the arsenal

December 7, 2021
Starting your journey
By Reframing Disability
Girl With Down's Syndrome Play Puzzle Toy With Her Teacher.

The amount of support available out there for families is phenomenal! 

But with so many specialists, therapists, educators, family members and friends lending a hand (it really does take a village), it can get a little tough to organise the team. 

We suggest building an arsenal of resources about your child and your family. That way, your team can hit the ground running, helping your child build capacity and confidence.

This arsenal can be shared with every new professional you work with, from therapists to doctors, specialists, and educators. Let’s get started! 

Sharing is caring!

This is not because you want to keep this information from your child, but because you want your sessions to be positive and coming from a place of strength and progress. 

Depending on your child’s age and level of understanding, there may be information you want to either discuss directly with a new professional before your child is present (and listening). Or that you want to forward in writing before the session.

Resource 1: The About Me profile 

Kids love doing things they enjoy. And kids succeed when they do things they love.

One of the most important things you can share with any member of your therapy team is an About Me profile of your little one. 

These are a great way to give a snapshot of the things that are important for your child. We’re talking favourites, interests, passions and people. It can also include things they don’t like, and the best strategies to support them.

Resource 2: The Parent Statement 

Another great tool to have in your arsenal is a Parent Statement. This can be a guide to what is important to you for your child – things like independence, equity, happiness, opportunity to succeed. 

You can also outline what you expect from therapy (like involvement in sessions, inclusion, family centred and child led approaches). And what you don’t want for your child (like exclusion, too much external support, learned helplessness, being singled out or separated from friends).

Resource 3: The Medical Story 

Consider writing your child’s medical story, so you can share it every time you are asked about milestones. We highly recommend this if you are at the early stages of your child’s journey, because it can be so annoying having to waste time, providing the information over and over again. 

Going back as far as pregnancy complications (or not), birth complications (or not), AGPAR scores, feeding challenges (or not), to first roll, first sit, first stand, first walk, first word, first clap, first diagnosis… it all helps.


Resource 4: The ‘same page’ communication platform 

Some families use different ways to keep communication open across the whole team, and share information, progress towards goals, and celebrate ‘wins’. 

We suggest looking at platforms like SameView or Google Docs.


Resource 5: The video log

There are many advantages to keeping videos of your progress, especially in therapy sessions. You can go back and listen to the language and cues used and see the way a child is physically supported through an activity. 

As well as recording in-session activities, you could also record your therapist talking about strategies, sharing background information, or making suggestions.  

Videos can jolt your memory and be shared with your partner or other members of your child’s team (therapists, pre-school, day-care, or a carer). 

Resource 6: The annual session

Can you have a half-yearly or annual session with your whole therapy team?

These kinds of sessions are a great opportunity to get everyone on the same page. You can share challenges and look for solutions, consider what has worked, and set goals for the next 12 months. 

If your child receives NDIS funding, it could be valuable to do this a few months prior to review. That way, you can prepare reports as part of the planning process.

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